Sacramento parents Kate and Mark took their daughter, Getty, to her routine 4-month pediatric appointment back in July and assumed that the most painful part of that trip would be the immunization shots that Getty would receive at the end of the visit. What they never imagined was that they would be told their daughter likely only had two years to live.
Getty was diagnosed with SMA1. Spinal Muscular Atrophy (SMA) is an inherited disease that causes progressive muscle degeneration and weakness, eventually leading to death. Infants like Getty with SMA Type 1 are born with very little muscle tone, weak muscles, and develop feeding and breathing problems over time. Weakness gets worse and will eventually become severe. There is no cure or treatment for the progressive weakness.
Since the condition is considered terminal a lot of the medical equipment that they will need will not be covered. In Getty’s honor and to raise money for the family, Mark and Kate’s friend, Stacey Ball, decided to organize a craft event.
The event will be taking place on Saturday, October 16th from 10AM to 2PM at Fremont Park at 1515 Q Street. At last count there was 77 vendors participating. There will be a raffle the day of the show and select vendors are donating a portion of their proceeds to the family.
You can find more information about Getty and this event at their blog: www.gettyowl.com. They also have a Facebook event that can be shared at:
Please help support Getty and her family by attending the event, making a donation or helping spread the word to others.
We’ll see you there!